Ara: A Different Sort of Battle

Strong of Heart

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The following story appeared in the 2015 edition of "Strong of Heart", chronicling the Parseghian family's battle with Niemann-Pick Type C disorder.

Cane now in hand, Ara Parseghian will occasionally pull to a halt in his South Bend home's hallway where many of the family photographs hang on the wall.

"That's when I take time to review our lives," says the 92-year Notre Dame football legend. "It reminds me of who we are and what has happened."

Tears sometimes well in his eyes. Memories that these pictures conjure up can scramble his emotions and cut him like a knife.

Three years ago, he and his wife Katie lost their daughter Karan to multiple sclerosis after three of their grandchildren--Michael, Christa and Marcia Parseghian--died of Niemann-Pick Disease Type C (NPC), a rare genetic disorder.

"You should never have to bury your children or grandchildren," Katie Parseghian says.

Never.

But yet it happened to them. Four horrific and heart-wrenching times.

Read more here.

 by Daily Domer Staff

Posted In: Features