Dr. Vincent DeGennaro Jr. '02 | Apr. 16, 2014 | Notre Dame Magazine
She marked an “X” on the signature line of the consent form, indicating that she agreed to participate in the study. Although she’s unable to read, Marie Maude was excited to partake in the research. “The information is important for Haitian women. I have two daughters and two sisters. They could both use this study,” she said with a slight smile, before adding, “I have two granddaughters too!”
Gabrielle, the nurse study coordinator, initiates the consent process for the patients. Sometimes she talks to the women as a group, explaining the study to everyone in the chemotherapy ward. Other times, she holds private discussions with individual patients. Either way, patients and family members have the opportunity to deliberate and ask questions.